生活在阿尔茨海默病的未知数
One patient faces the progression of Alzheimer’s disease through family, positivity and supporting research.\r\n"}}" id="text-d496cf8828" class="cmp-text">
一个病人通过家庭面临着阿尔茨海默病的发展,积极和支持研究。
不可预知的未来
Jim Butler thrives on knowledge. The 72-year-old knows that when he wakes, he will read the daily paper over a cup of steaming coffee and a bowl of cereal. He knows that later, he’ll watch the news and traverse the city by bike, watching the world stream by despite an ostensible stillness created by the COVID-19 pandemic. What he doesn’t know is how and when his mind and body will deteriorate as a result of his Alzheimer’s disease – nor if he will know when it happens.\r\n
Jim can remember how his father’s Alzheimer’s disease progressed as a frame of reference. But he knows that it’s impossible to predict exactly how the disease will affect himself. “I hope I get real lucky and I don’t slip anymore,” Jim says. “My guess is if this thing gets worse, I’m not going to be cognizant of a lot of it.”
\r\nAmidst the weight of this looming unknown, Jim knows he can face each day toward an uncertain fate because his family will help him navigate the journey and because he is doing what he can to make a difference in Alzheimer’s research.
\r\n"}}" id="text-95969b7975" class="cmp-text">吉姆·巴特勒在知识。72岁的知道,当他醒来,他将读日报在一杯热气腾腾的咖啡和一碗麦片粥。他知道后,他会看新闻和骑自行车穿越城市,看世界流尽管表面上宁静COVID-19创建的大流行。什么是他不知道如何以及何时他的身心将恶化由于他的阿尔茨海默氏症——或如果他会知道什么时候会发生。
吉姆能记得他父亲的阿尔茨海默病进展作为参照系。但他知道这是不可能准确预测疾病如何影响自己。“我希望我得到真正的幸运,我不滑了,”吉姆说。“我猜如果这件事情变得更糟,我不会认识到很多。”
在这即将到来的未知的重量,吉姆每天知道他可能面临向一个不确定的命运,因为他的家人会帮助他在旅程,因为他在做什么他可以改变在阿尔茨海默氏症的研究。
家庭就是一切
Jim was diagnosed with Alzheimer’s disease in 2016 after repeated instances of confusion and struggling with daily tasks prompted him to see a doctor. For him and his wife, Lisa Butler, the news was devastating. “We thought this was the beginning of the end,” he says.\r\n"}}" id="text-f359added3" class="cmp-text">
吉姆在2016年被诊断出患有老年痴呆症的混乱和重复实例在日常任务促使他去看医生。为他和他的妻子丽莎·巴特勒,新闻是毁灭性的。“我们认为这是结束的开始,”他说。
Since his diagnosis, Jim says he has found peace and learned to live with the “hiccups,” or the dozens of memory lapses he experiences daily. He smiles at them and focuses on the positives – headlined by his family. “I have a lot to cherish about my life and a lot to enjoy in my life,” Jim says. “There’s nothing in my life more important than family and friends.”\r\n
Lisa, a central figure in Jim’s familial support system, bolsters Jim daily by ensuring he has opportunities to be active and engaged in his retirement from a decades-long career in drug rehabilitation services – despite she herself working full time six days a week. Every morning, she wakes up thinking of suggestions to keep him occupied so he doesn’t dwell on his diagnosis, a strategy that has been complicated by COVID-19 lockdowns. “I just try and help him if I see him kind of bored,” Lisa says. “A lot of this time, he has been bored because there’s only so much you can do.”
\r\n"}}" id="text-3042eebca2" class="cmp-text">自诊断,吉姆说,他找到了和平,学会去适应“打嗝”,或每天记忆失误他经历的几十个。他嘲笑他们,正面影响关注因他的家人。“我有很多关于我的生命珍惜和享受在我的生活中,”吉姆说。“在我的生活中没有什么比家人和朋友更重要。”
丽莎,吉姆的家庭支持系统的核心人物,支持吉姆每天通过确保他有机会积极从事戒毒康复服务的退役长达几十年的职业生涯,尽管她自己全职工作每周训练六天。每天早上,她醒来想到的建议让他占领了所以他不停留在他的诊断,这一策略已被COVID-19复杂的封锁。“我只是试着帮助他如果我看到他无聊,”丽莎说。“很多这一次,他已经厌倦,因为你能做的只有这么多。”
吉姆靠他的家人支持他导航阿尔茨海默氏症。
Jim also finds support in other immediate and extended family members. He smiles over memories he hopes to always recall, of flying in the two-seater plane he and his son built and spending so much time with his sister.\r\n"}}" id="text-7cdfd3e485" class="cmp-text">
吉姆还发现其他直接和大家庭成员的支持。他微笑他希望总是回忆,回忆双座飞机飞行的他和他的儿子建造和花这么多时间陪他的妹妹。
韧性是研究的关键
Despite hurdles in Alzheimer’s research, scientists continue to examine potential paths toward disease modification. “Alzheimer’s is a complex disease riddled with unknowns,” says Dr. Olga Sánchez-Soliño, global neuroscience therapeutic area head, global medical affairs, AbbVie. “We need to keep on trying. We must be resilient and have hope. Such a big impact in Alzheimer’s is yet to come.”\r\n
Dr. Sánchez-Soliño also points to the critical role patients play in the search for potential treatments. “We need to work together with investigators and count on the incredible generosity of patients who are willing to participate in clinical trials,” Dr. Sánchez-Soliño says. “We are very grateful to these patients who contribute their time and energy to advance research.”
\r\n"}}" id="text-5d5c96903f" class="cmp-text">尽管障碍在阿尔茨海默氏症的研究中,科学家们继续研究潜在路径对疾病的修改。“阿尔茨海默氏症是一种复杂的疾病充满未知数,”奥尔加Sanchez-Solino博士说,全球神经科学治疗区域负责人,全球医疗事务,AbbVie。“我们需要继续努力。我们必须有弹性,有希望。在阿尔茨海默氏症还没有这么大的影响。”
Sanchez-Solino博士还指出,病人扮演关键角色在寻找潜在的治疗方法。“我们需要与调查人员合作,依靠难以置信的慷慨愿意参加临床试验的患者,“Sanchez-Solino博士说。“我们非常感激这些病人贡献他们的时间和精力来推进研究。”
For Jim, participating in clinical trials is the least he can do to help researchers in the fight for treatments. “I really appreciate their efforts to try to find a cure,” Jim says. “If my simple job is to just go on in there and take some cognitive tests and get infusions every month, [I] want to contribute.”\r\n"}}" id="text-a8d43ce3f0" class="cmp-text">
对吉姆来说,参与临床试验是他所能做的最起码的事帮助研究人员在争取治疗。“我很感激他们的努力试图找到一个治疗,”吉姆说。“如果我的简单的工作是继续在那里带一些认知测试,注入每一个月,我想贡献。”
现在,生活每一天
In addition to leaning on family, Jim invests in each day as much as he can – at home with chores and in society with politics – as a way to cope with his diagnosis. Participating in Alzheimer’s advocacy through patient groups and clinical trials also gives Jim a sense of purpose and pride. “It’s like being part of the team,” Jim says. “If I can put a helpful face to someone who’s covering this ground, that’s making a big contribution.”\r\n"}}" id="text-eb5ab94565" class="cmp-text">
除了依靠家庭,吉姆每天尽可能多的投资——在家里做家务和社会与政治——来应付他的诊断。参与老年痴呆症倡导通过病人团体和临床试验也给了吉姆的使命感和自豪感。“就像团队的一部分,”吉姆说。“如果我能把一个有用的脸上覆盖了这片土地的人,这是犯了一个重大贡献。”
Media inquiries:
\r\nDavid Freundel
\r\nEmail: david.freundel@abbvie.com
\r\nCall: +1 847-937-4522\r\n"}}" id="text-afec60b051" class="cmp-text">
\r\nDavid Freundel
\r\nEmail: david.freundel@abbvie.com
\r\nCall: +1 847-937-4522\r\n"}}" id="text-afec60b051" class="cmp-text">
媒体询问:
大卫Freundel
电子邮件:(电子邮件保护)
电话:+ 1 847-937-4522
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